End of Life

Palliative and End of Life Care

Further information

Dying well at home: commissioning quality end-of-life care (February 2023) Increasingly, people are dying at home rather than in hospital, and this trend is set to continue. This King’s Fund report considers how care can be improved for those dying at home and provides key recommendations.

Talking about dying: How to begin honest conversations about what lies ahead (October 2018)

'Talking about dying: How to begin honest conversations about what lies ahead' report produced by Royal College of Physicians (London) seeks to offer advice and support for any doctor on holding conversations with patients much earlier after the diagnosis of a progressive or terminal condition, including frailty.

Dementia: assessment, management and support for people living with dementia and their carers | Guidance and guidelines from NICE (June 2018) This NICE guideline covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia. NICE has also produced a guideline on mid-life approaches to delay or prevent the onset of dementia.

Wirral End of Life Care Charter - Online Resource launch (May 2016) The launch of the new Online Resource, created to support the Wirral End of Life Care Charter, will take place on 11th May during Dying Matters week. This Resource has been created to help everyone seeking help and guidance concerning end of life care on Wirral, whether they are members of the public or professionals. Opinions are being sought on an ongoing basis, to help the Resource evolve and develop. Access the leaflet promoting this new online resource and access the new online resource on the End of Life Care website. 

Care of dying adults in the last days of life (NG31 December 2015) This NICE guidance covers the clinical care of adults (18 years and over) who are dying during the last 2 to 3 days of life. It aims to improve end of life care for people in their last days of life by communicating respectfully and involving them, and the people important to them, in decisions and by maintaining their comfort and dignity. 

Every Moment Counts: a narrative f or person-centred coordinated care for people near the end of life (March 2015) National Voices have published their fourth Narrative for Coordinated Care. The narrative sets out how good, coordinated – or integrated – care looks to people near the end of life and is written from their point of view. 

CQC Inspection of Wirral Community NHS Trust 
End of Life Care (November 2014) - overall rating Good - Access the 'End of Life Care' report

 Curie End of Life Care Atlas The Marie Curie End of Life Care Atlas is a web-based mapping tool which brings together a broad range of data on end of life care across the UK’s health landscape. The tool allows users to compare end of life care across areas as well as compare areas against national benchmarks across a range of key indicators. It also gives people who plan and commission end of life care insight into care provision in their local areas. For older web browser versions click this link to view. 

NHS England Actions for end of life care: 2014-16 This document sets out what NHS England intends to do over the next two years to improve end-of-life care for adults and children. 

Your Life: Your Choice: An integrated approach to making care decisions in advance with children, young people and adults (April 2014) All care decisions must come from a shared partnership between the professional and the child, young person or adult. This 'deciding right integrated approach'  provides the principles by which all health organisations can set their policies to encourage this partnership around care decisions made in advance for people who may lose capacity in the future.

One chance to get it right: Improving people’s experience of care in the last few days and hours of life. Leadership Alliance for the Care of Dying People (June 2014) This document sets out the approach to caring for dying people that health and care organisations and staff caring for dying people in England should adopt in future.